Ken and Julie have been married for 25 years and have three wonderful children. Kathleen is 22, Clayton is 20 and Emily is 18. As a family, they have juggled all the typical activities through the years, running to hockey arenas, soccer fields, school functions, running to and from part time jobs and extracurricular activities. However, their lives are far from typical.
As infants, Kathleen and Clayton were diagnosed with Cystic Fibrosis. With this disease, each day is faced with hours of breathing treatments, and an enormous regime of medications, both IV and oral. As a family, they are no stranger to the welcoming halls of CHEO and the Ottawa Hospital.
These past few years have been particularly challenging for the whole family as Kathleen’s health deteriorated rapidly. Last April, while battling “end-stage” disease, Kathleen unbelievably got the life-changing call for new lungs.
At this year’s Gala, Julie and Kathleen will be sharing their Cystic Fibrosis journeys and the realities of living with this dreadful disease. Julie will highlight the ways that CF impacts the whole family and Kathleen will speak about the difficult journey that led her to a double lung transplant and how she is doing today.
Be inspired by the Hanna family’s courageous journey, and hear about their hope for a brighter future for their children and other CF Champions.
Canada continues to be on the forefront of cystic fibrosis research, patient care and advocacy. Your support of this event will help Cystic Fibrosis Canada support more families like the Hanna’s, and will help fuel us towards our vision: a world without cystic fibrosis.